Such a week. Subsequent to my annual chest CT scan (I get one every year due to my scleroderma), I’ve been diagnosed with a non-tuberculous mycobacteria (NTM) lung infection. It is rare, even more rare than scleroderma. But I have all the markers:
- Tall, thin, Caucasian woman, with scoliosis and a malformed breastplate.
- And an immune disorder.
Mycobacteria are everywhere in water and soil, and most people’s systems just shrug them off. But not mine.
- It’s not cancer, congenital, genetic, or contagious. It is opportunistic in the right host. Like my little body.
- What it means for me: 1 – 2 years of a treatment program, 3 antibiotics taken concurrently, oral and IV. If you are familiar with drug toxicity, you can imagine what’s ahead of me.
Yes, I have symptoms now, and I have gotten in touch with an Orlando pulmonologist for continuing care. I’m moving in 4 weeks…
Scared? yes, a bit. It’s unexpected, to say the least. Exotic ? But I have lots of family support, and I’ll just keep sewing and focusing on all the wonderful things 🙂